From moment to moment

the globe has no ‘end’ – no finish line as with autism.
Perception of competence in one area can not negate the reality that there may be serious challenges in others. -a diary of a mom-

There will not be a day where we reach the end, autism changes every second of every day.

one week you wonder what your worrying about because look! he is thriving pretending , engaging and spontaneous. he let you brush his teeth, bathe him (still no hair washing) but its better than before.

another he is refusing to leave the house and no amount of bribing has worked, time out has failed and here you are forcing him out the door and into the car just to run a quick errand.  (to him it seems your never going to return home) he has shut down and wont respond along with refusing to use his words.. I could offer him the moon and he would still give nothing.

But I know next week  or even 5 minutes from now I could have my happy spontaneous little man as engaging as ever back . That is what makes all the work all the therapy , the medicine we contemplated worried over and all the hours and I mean hours of research so very worth it.

because maybe one day the moments of disconnect will be so few  that we wont even notice or at-least they will not hurt as bad.
nothing hurts as much as not knowing how or what to do to reach your own child especially in a moment when you know they need you.

this is the beast of autism, where one moment your making so much progress and the next your wondering where all that progress went but Wait! dont blink because your on to the next hurdle with some new issue to tackle.